Privacy policy

This policy describes how the European Fetal Alcohol Spectrum Disorders Alliance uses and protects your personal information. We do not share your data with any other person or organization for any reason whatsoever. We will use this data only as necessary to send you information that you have requested, for membership administration, or to arrange attendance at our conferences or if required by law. In individual cases, if we are asked for your contact address, we will share this only after asking you for your explicit permission.

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This policy was created in May 2018 in order to comply with the new General Data Protection Regulation (GDPR), which comes into force on 25 May 2018. We will update this policy as necessary to remain in compliance with the GDPR.

Information we collect and what we do with it

We collect three kinds of data: (1) e-mail addresses for mailings, (2) information on member organizations, and (3) information for abstract submission and registration for conferences.

1. E-mail addresses for mailings.
At your request, you can receive our news roundups and conference news. These mailings are managed by a commercial service, Your Mailing List Provider,, which is GDPR compliant. You can subscribe via our website and unsubscribe at any time via a link at the bottom of our e-mail messages. The only information collected for this mailing list is your e-mail address, which you give voluntarily and which we use on the legal basis of "consent." The only people who have access to this mailing list are Lauri Beekmann, who sends the e-mail roundups, and the chairperson of the EUFASD Alliance, Diane Black Please contact one of these people in case of any questions.

2. Information on member organizations.
When an organization applies to become a member, we request a certain minimum of information, including the names and e-mail addresses of the contact persons. This information is available to the members of the Board of the EUFASD Alliance and is kept confidential. We hold this information on the legal basis of "legitimate interest." We will use this information to contact you with information relevant to our members, conference information, information on payment of dues and arrears, etc. On the EUFASD website, we post the name, logo, and web url of member organizations. If for any reason your organization does not wish to be publicly listed on the website, or wishes a change of name or logo or url, or if your organization no longer wishes to be a member, please contact Diane Black Your information will be kept and updated as long as your organization is a member. If you inform us that your organization no longer wishes to be a member, we will delete your membership information from our files.

3. Information for abstract submission and registration for conferences.
During the process of abstract submission and registration for the conferences, minimal information is collected, for example your name and e-mail address. This information is only used for conference purposes and is otherwise kept confidential. If for any reason you do not wish to disclose all the requested information, mail to for an alternative method to register. The original registration forms are held by the EUFASD Alliance and associated local planning committee. This information is never shared with any other person or organization, and will only be disclosed if required by law. We hold this information on the legal basis of "legitimate interest." We specifically ask if you want your name and e-mail address listed in the program book. If you give permission, this information will appear in the list of attendees in the printed program book but not in the on-line version. If you do not give permission, your name will not appear in the program book list of attendees.

Who we are

The European Fetal Alcohol Spectrum Disorders Alliance is an international non-profit-making organization registered in Sweden (Tax office registration number 802459-2654). Our Statutes can be viewed here.

Your rights

Under the GDPR you have certain rights about what happens to your personal information. For a description of these rights, see . In particular, you have the right to be informed about what we do with your data, which this document provides. You have the right to access the data we hold, to have errors corrected, and the right to erasure of your data. For any questions on these issues or to exercise any of these rights, contact Diane Black

[version 25 May 2018 19:54]


European Fetal Alcohol Spectrum Disorders Alliance
Borgmästargatan 6

Registered in Landskrona, Sweden
Tax office registration number 802459-2654